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CONNECT

It is our mission to gather information and connect people in similar situations. Please help us in any way that you can.

HELP US GET TO KNOW YOU

Help us gather hard #’s of people affected in our community by selecting any/all that apply to you below. We will be in touch soon!

  • Data matters according to location. Please tell us where you're from!
  • In the Rare Disease community, numbers mean everything. Please let us know your current involvement with rare diseases.
  • If you have a rare disease or are a caregiver for someone with one, please let us know what type of rare disease you/they have.
  • Please let us know how you'd like to stay involved in the rare disease community! We will reach out to discuss your options further and THANK YOU for helping out!

QUESTIONS?

Have a quick question? Shoot us an email below and we’ll do our best to get back to you in a timely manner.

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