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ARE AFFECTED
We are more than a number.
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COST TO FIND A CURE
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FAMILY AFFECTED
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HOW CAN YOU HELP?
Rare U exists because of the support and involvement of people like you. Based on your unique preference, our members are able to contribute to the mission of Rare U in four significant ways:
Rare U collects important data from our community to utilize when advocating for increased access to rare disease medical care and resources. Simply through providing your information, you can help us create the change we are all seeking.
Opt to receive regular communication from Rare U to stay up to date on events and ongoing.
Meet fellow caregivers and connect with local families ready to offer support, encouragement, knowledge, and rest.
Create a seat at our table. Ready to take action? Become a speaker and share your story at one of our events, help spread the word, or become a hands-on advocate for change through grant writing, etc.
