Rare U – Rare Disease Awareness Website

WHAT IS RARE U?

Rare U is a network of individuals and families affected by rare diseases dedicated to providing support, furthering research, and creating access to rare disease information and healthcare in the Inland Northwest.

RARE U EXISTS TO ACCOMPLISH THREE GOALS WITHIN THE INLAND NORTHWEST:

BUILD COMMUNITY

Through gatherings and events, nurture a community made up of individuals and families affected by rare disease in order to provide support, knowledge, and resources for caregivers.

GATHER INFORMATION

Gather personal data from our community to expand our understanding and collective research of rare diseases.

INCREASE ACCESS TO CARE

Utilize this data to advocate at a top-level for increased local access to rare disease treatments, information, and the advancement of medical research.

At Rare U, we understand your unique needs and struggles because we are you: we are a collective of individuals and families affected by rare disease committed to providing a supportive community and increasing rare disease awareness.

MORE ABOUT US

WHY RARE U?

Finding ourselves and others facing a lack of information and care access in the Inland Northwest, Rare U was established in order to solve two problems: eliminate the feeling of isolation among families dealing with rare diseases, and advocate for better access to research and care by collecting information on rare disease experiences from people like you.

GET INVOLVED

How can you help the rare disease community?

YOU CAN HELP

The Rare U only works because of people like you that are willing to give a voice to rare diseases across the globe. Read about all of the ways in which you can help Rare U make a difference and join us in finding a cure for even the rarest diseases out there.

WHAT IS RARE U?

Rare U is a network of individuals and families affected by rare diseases dedicated to providing support, furthering research, and creating access to rare disease information and healthcare in the Inland Northwest.

RARE U EXISTS TO ACCOMPLISH THREE GOALS WITHIN THE INLAND NORTHWEST:

BUILD COMMUNITY

GATHER INFORMATION

INCREASE ACCESS TO CARE

TOGETHER,
WE ARE RARE

At Rare U, we understand your unique needs and struggles because we are you: we are a collective of individuals and families affected by rare disease committed to providing a supportive community and increasing rare disease awareness.

WHY RARE U?

GET INVOLVED

YOU CAN HELP

OUR COMMUNITY IS YOUR COMMUNITY

UPCOMING EVENTS

PAST EVENTS

WHAT IS RARE U?

Rare U is a network of individuals and families affected by rare diseases dedicated to providing support, furthering research, and creating access to rare disease information and healthcare in the Inland Northwest.

RARE U EXISTS TO ACCOMPLISH THREE GOALS WITHIN THE INLAND NORTHWEST:

BUILD COMMUNITY

GATHER INFORMATION

INCREASE ACCESS TO CARE

TOGETHER, WE ARE RARE

At Rare U, we understand your unique needs and struggles because we are you: we are a collective of individuals and families affected by rare disease committed to providing a supportive community and increasing rare disease awareness.

WHY RARE U?

GET INVOLVED

YOU CAN HELP

OUR COMMUNITY IS YOUR COMMUNITY

UPCOMING EVENTS

PAST EVENTS

TOGETHER,
WE ARE RARE